authors

• Uhlenbusch, Natalie
• Löwe, Bernd
• Depping, Miriam K

publication date

• January 1, 2019

published in

• BMJ open  Journal

has subject area

• Adult
• Aged
• Cholangitis, Sclerosing
• Cost of Illness
• Female
• Focus Groups
• Germany
• Humans
• Male
• Marfan Syndrome
• Middle Aged
• Neurofibromatosis 1
• Pulmonary Arterial Hypertension
• Rare Diseases

Keywords

• mental health
• qualitative research
• rare diseases

Digital Object Identifier (DOI)

• https://doi.org/10.1136/bmjopen-2019-033353

PubMed ID

• 31888936

start page

end page

volume

• 9

issue

• 12